 Joe is such an amazing husband. He has been so supportive. Joe began a fundraiser for my medical and surgical needs. We thought relief was in sight. My surgery in Florida was scheduled. Only 2 more weeks of living with the current pain, embarrassment, rashes, etc.
Even after a Peer-to-Peer with my surgeon, my health insurance company denied my surgery. I am doing everything asked of me. I am praying that in the next 2 days my appeal goes through, otherwise I have a long road ahead of me seeking other options. Another year or more of my life will be stolen from me, from my children. This is so painful emotionally. I am tired of living with daily rashes, pain, bleeding, burning, anxiety, etc. I was exited to begin a new chapter in our lives. Instead, more disappointment and stress. Praying an answer comes soon. For now, I will pray and continue to fight. I am sure Joe will also keep people informed on the site he set up: Fundraiser for Elisa's Medical Needs and Aftercare
4 Comments
Jean Dick
7/23/2018 05:39:08 pm
Hi Elisa, firstly, let me say I had UC at 14 and eventually after in and out of hospital until 21 when I had an ileostomy. Such a shock to your body and emotions and I had been dating. Robin and I were married when I was 23 and the first time he saw my bag was on our honeymoon. Can you imagine?? In those days the appliance was horrendous, black rubber bag, corset and all that goes with that like leaking and lots of accidents. We have now been married 52 years and he is the greatest and most patient and understanding man. Had my BCIR at 58 and he did not want me to go through this surgery, said he was so used to the ileostomy. Anyway, cut a long story short, I am now 75 and have a lovely life. I also had a tough time growing up and probably how I ended up with UC. Seems to me you have a wonderful husband who loves you dearly and that is great. By the way, I was able to wear pants and swim suits, also tight clothes and no one ever knew I had a bag. I will pray that the BCIR is for you and that the insurance will come through for you. If you ever want to talk, I am here. Blessings to you and your family💗🙋🏼 10/20/2018 02:21:37 am
There are certainly a lot of details like that to take into consideration. That is a great point to bring up. I offer the thoughts above as general inspiration but clearly there are questions like the one you bring up where the most important thing will be working in honest good faith. I don?t know if best practices have emerged around things like that, but I am sure that your job is clearly identified as a fair game. Both boys and girls feel the impact of just a moment?s pleasure, for the rest of their lives. Leave a Reply. |
About ElisaI am a Wife. I am a Mom. I am a Step-Mom. Hi! I am Elisa. I am Not Wonder Woman, and will never be. Archives
June 2018
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